Gray's Journey After an Unexpected Diagnosis
Published on Monday, October 28, 2024
By: Rachel Browning Truong, rbrowning2@umc.edu
In July 2020, Gray Trainor entered the world under unexpected circumstances at Oktibbeha County Hospital in Starkville, Mississippi. After a seemingly healthy pregnancy, his mother's labor failed to progress, leading to an emergency C-section. It was during this procedure that doctors discovered a small spot at the base of Gray's tailbone - a diagnosis of myelomeningocele that had gone undetected throughout the pregnancy.
Just a few hours after his birth, Gray Trainor was prepared for transport to Children's of Mississippi for unexpected spinal surgery.Myelomeningocele (a form of spina bifida) is a birth defect where the spine and spinal cord don't form properly and typically develops in the first few weeks of gestation. Gray's case was particularly rare, as it had been overlooked in every ultrasound and test during pregnancy.
Within hours of his birth, Gray was transported to Children's of Mississippi in Jackson for emergency surgery. Dr. Kristin Weaver, a specialized pediatric neurosurgeon, performed a successful myelomeningocele closure on the opening on Gray's spine.
Before they even made it to Jackson, Gray's parents experienced the compassionate care provided by Children's of Mississippi. "As I was separated from my son, Gray's neurosurgeon took the time to FaceTime me, ensuring I understood the complicated surgery and patiently answering my questions," explained Andrea Trainor, Gray's mother.
As he recovered from surgery, Gray stayed in the Neonatal Intensive Care Unit. "I would like to thank Children's of Mississippi for the remarkable level of care we received and continue to receive. During this time, there were so many staff members, nurses, and specialists that helped us navigate this dark and trying time," says Andrea. "This has not changed at all throughout our whole experience with the many doctors we have worked with. They are always quick to respond and answer any questions, and they truly care about their patients."
The multidisciplinary spina bifida care team at Children's of Mississippi includes orthopaedic surgeons, urologists, physical therapists, psychologists, social workers and experts in pediatrics, orthotics and complex care.The family's experience at Children's of Mississippi goes beyond medical care. Andrea has become an active advocate for the hospital through her fundraising efforts with the Logger Society of MS, helping to ensure other families can benefit from the same exceptional care Gray received. His story has allowed his family to offer support and reassurance for other families facing similar challenges.
As part of his continued care, Gray is now a patient at the multidisciplinary Spina Bifida Clinic at Children's of Mississippi. This clinic, recently recognized as a Spina Bifida Association Care Partner, provides comprehensive, coordinated care for individuals with spina bifida. The clinic brings together specialists from various disciplines, including neurosurgery, urology, orthopedics, pediatrics, psychology, social work, and physical therapy, allowing patients like Gray to see multiple doctors in a single visit.
Despite the challenges associated with spina bifida, Gray has defied many expectations. Now a thriving young boy, he can walk, run, and is even potty trained - achievements that are relatively rare for children with his diagnosis.
In May 2024, Gray Trainor and his mother, Andrea, shared a memorable moment as they crossed the finish line together in a one-mile fun run. 
Weaver“Gray is fantastic. He always has a smile on his face whenever he comes to clinic. He has done amazingly, and I can’t wait to watch him grow,” said Dr. Kristin Weaver.
As Gray grows and thrives, his family remains grateful for the exceptional care they've received at Children's of Mississippi. They see Gray as their "little miracle" and are excited to see what the future holds for him.
The Pediatric division of the Department of Neurosurgery at Children's of Mississippi, led by dedicated professionals like Dr. Kristin Weaver, provides hope and healing to children like Gray. Through their expertise and the support of the multidisciplinary Spina Bifida Clinic, they are changing lives and rewriting the narratives of children born with complex neurological conditions.